So here we are already at blog 6 and so much has happened. We had hoped to have Charlie home on Tuesday of this week but he needed more anti-biotics due to his immune system being so weak. He had about enough energy for 15 minutes in the playroom each day,the rest of the day was spent cooped up in his shared room watching tv,reading books,blowing bubbles and asking so many questions about what was going on around him!
The consultant did her daily rounds and told us he would need another blood transfusion so this went ahead on Wednesday afternoon/evening (thank goodness for those generous people who give blood as he must've had 5 transfusions since January now).
Charlie was so funny with the nurses and soon became a favourite with them. He often asked "whats that does mummy" pointing to the long tubes which had blood or drugs running from his robot, into his port and "can I help you" to the nurses whilst they were administering him his anti-biotics. If they said no then he'd question why not! We were informed by the consultant that it was highly likely that Charlie would get another fever as this stage of treatment as its so intense and his white counts (which fight infection) are extremely low. This made us question our much longed for night away. I ran it past the Social Worker and she advised that we went as she felt it would be benificial for me and Paul to have some alone time and the property wasnt too far away if we needed to rush back.We still thought we'd leave it until Friday to decide.
After Charlie's blood transfusion on Wednesday, mum and me took him home to a very excited older brother and a shattered daddy. Thomas was waiting in the driveway and couldnt stop cuddling him and they soon went off to explore all their toys together. Paul came in from work pleased that he finally had a night in his own bed after doing most of the night shifts at the hospital then going to work the following day whilst I did the day shifts.
I was eventually able to do the school run on Thursday which was lovely as it brought a bit of normality to what was a mad week. I asked Tom's teacher how he'd been this week and she had given him stickers for tidying the whole classroom and a prize for being so good. Maybe I need to get him practising his tidying skills at home!
Charlie had his blood counts done again on Friday and although they were still very low, they hadn't reduced any further so we decided to go on the much needed night away. The property was beautiful and the surroundings even more so. It was set in 10 acres of woodland and was so peaceful so we had a night alone and then my parents and the boys came up on Saturday for the day.
Before they arrived, we got talking to the owner and he mentioned that his son died of cancer at the age of 16. My heart raced at this and as he would be seeing Charlie around, I mentioned that he had (ALL) Leukaemia, which it turns out was the same type as his son had died from. Great, our relaxing weekend was now getting me worried as I'd managed to block these thoughts out for the most part up until now, and stay positive. He was a lovely man with a positive attitude but you could see the heartache in his face when I mentioned Charlie as it obviously brought memories back for him.
Since this conversation, I have shed quite a few tears thinking what could be for us and the effect it would have on us as a family,especially Thomas and the special bond he has with his brother. Paul and me think it strange that of all the places I could've booked, we stumbled upon here,Soul Garden Retreat, named with his son in mind. We had a wonderful time exploring the local village and its quaint shops with breath-taking views. We had the time and space we needed to unwind and reflect on whats actually going on for us right now, and maybe this is why we were brought here,who knows...?
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