So today is Thursday and you may have seen the pictures of Charlie up and playing with his water table in the garden. It may have only been for a short period as he was so lethargic, but it was worth getting the camera out for!
Thomas has gone off to school today all excited about his school party this afternoon and I plan to walk down to collect him which is the first time in about a month now so that will be special (may sound crazy, but even the small things are huge when you're going through this crap)!
Charlie was stocked up with books and DVD's this morning ready for our stint in the hosptial. He had been fasting since 5pm yesterday-I was meant to wake to feed him before 4am (this was his cut off for food/drink) but I slept til 5.30am, oops and poor Charlie. So off we went, and all the way to the hospital he asked to go home. The nurses did the usual Observations; weight,temperature, blood pressure, tagged him, etc then he got needled up in his port, ready for the "unicorn milk" they give him in theatre to get him to sleep. Charlie was desperate for a drink/food and how guilty I felt for not waking to top him up in the night (I'll set my alarm next time)!!
Anyway, after a few hours of entertaining him with books, DVD's (and luckily there was a big digger outside on the building site which occupied him for ages), we went in to see the Consultant (our lovely Scottish Dr) and she informed me that we should have been contacted last night to be told his neutrophils are still low so he cant go ahead with treatment. It was to be expected to be honest but he didnt therefore need fasting or needling up.Aghhh!! She apologised for no one contacing us and a new appointment was set for next week,same time same place.We hope that giving his little body a rest from treatment for a week will allow it to recover in time for theatre and chemotherapy next week.
After leaving the Oncology Out patients, I took Charlie to the hospital cafe (we know how to live it up) and he asked for Peanut butter on toast but a plate of chips had to do! Once out of the building and fed and watered he was much perkier and happier but who can blame him?!
I want to highlight what a big part Paul has also played in getting us through all this. Paul has been so strong when its been needed and is the best dad I know (sorry to all the dads out there but it is only my opinion)! It isnt easy for either of us and we dont get much "alone time" but (cliche alert) working as a team is getting us through this tough time. It is only 2 weeks til my folks arrive and we will hopefully be able to get some time together and we have booked a night away which will be heaven (sleep is definitely on the cards)!
Thank you for reading the update and I will be around soon with another blog!
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