Welcome back and thank you for reading the last blog. Sorry it made so many of you cry but it wasnt my intention,just a snippit of the reality we're living in at the moment.(I also believe some of you wanted to leave comments but it wouldnt allow it.I think you may need to be a "follower" to leave comments)?
After a very tough weekend of even lower blood counts and virtually no sleep, things are looking like they are starting to improve for Charlie this week. He had more than 2 hours sleep last night which was a god send, and is now up and playing with his toys-hooray!
As of yesterday, Thomas is now a fully fledged cyclist after learning to ride his bike properly with his dad's expert tuition (with a little help from Uncle Rob when he was over here). Tom reminded us that we should be proud of him because he is proud of himself!Good old Tom.
He has a new teacher at school this term and he seems to have settled well with this change. He told Paul that he is enjoying being at school more than home at the moment as "I dont like seeing Charlie poorly" and who can blame him?(sometimes I wish I could escape too)! The school community have arranged for Thomas to be picked up and dropped off at home until Charlie's counts improve and this is a huge weight lifted off our shoulders as it means Charlie doesnt have as much opportunity to be exposed to any bugs which maybe flying around. The parents are so supportive which makes life that bit easier.
People have been very generous in continuing to make us home-made meals which has eased the pressure of trying to get a decent meal on the table whilst at the same time, trying to tend to Charlie's demands-oh and does he have some!! Thanks to Sharon and Matt we had a great meal last night with buns to finish off-I am in no danger of wasting away,believe me!
Unfortunately we had to invest in a set of hair clippers on Saturday and shaved the remainder of Charlie's hair off as it was falling out in clumps and causing him distress with the itching. It wasnt the easiest thing to do as Charlie was renowned for his full head of hair but it will grow back and he's still a very beautiful little boy even without the hair.
After a paltry 2 hours sleep I was determined to still go to the early morning farmers market on Sunday which a couple of friends had arranged with me earlier in the week. It wasnt the best idea I'd had but I was so desperate to get out of the house,anything would do! It was the respite I needed and the bananas were a bargain at the equivalent of £6 for 8-for those of you in England,you read right and I'm sure you'll be gloating next time you get your nice bunch of bananas from Morrisons at 70p a bunch! (the cyclone wiped a lot of the crops out here,hence the price).
Fingers crossed Charlie will continue to improve this week and his counts are good enough by Thursday to have his next stage of treatment. This will involve a 6 hour flush to ensure the Chemo isnt sitting in his blood stream, a lumbar puncture and chemo.
Just seeing him smiling,talking and interacting again has perked us all up and I'm sure it will continue as the week goes on as he is a little fighter with a lot of spirit in him. Charlie by name and Cheeky by nature!!
ps Happy Birthday to my little brother who is 28 today!!!
Good work Lisa.
ReplyDelete